Angelma Syndrom

Association/Organization in Aurora, IL
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The mission of the Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and … See more

Services offered

Frequently asked questions

Q:
Did you do an entrance and exit interview by the caregivers to capture changes that they saw, or did not see, that could have been lost, or not captured, in the endpoints you were using?
A:
Particularly with rare diseases, we believe that caregiver involvement is critical at the early stages of drug development and their insights are shaping our work every day.
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