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One of the biggest misunderstandings around pacing in ME/CFS is that it’s only about being careful. Avoiding PEM matters. Stabilizing matters. But if pacing is only about preservation — with no strategy for expansion — it eventually becomes a waiting game. You’re just waiting for the moment life inevitably pushes you outside your baseline. Because life will happen. A medical appointment. An illness in the house. A loss, a stressor, something you can’t opt out of. And when pacing is centered enti
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One of the biggest misunderstandings around pacing in ME/CFS is that it’s only about being careful. Avoiding PEM matters. Stabilizing matters. But if pacing is only about preservation — with no strategy for expansion — it eventually becomes a waiting game. You’re just waiting for the moment life inevitably pushes you outside your baseline. Because life will happen. A medical appointment. An illness in the house. A loss, a stressor, something you can’t opt out of. And when pacing is centered enti
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ME/CFS.. so it a lot of breathing.. and slowing down - pacing will make me normal again?! I’ve been breathing incorrectly for my nervous system for 33 years?! #mecfs #speechandlanguage #findmysparkle #nervoussystemhealing #breathing
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