✨ Looking back on 2025, with thanks ✨ As we come to the end of 2025, and bring our 20th anniversary year to a close, we want to pause and reflect on what we’ve achieved together, thanks to your support. This year, Cavernoma Alliance UK grew into a community of over 4,200 people! 📣 Our social media posts were viewed almost 1 million times, raising awareness of cavernoma 🌐 30,000 new people visited our website looking for trusted information 💬 We directly supported around 1,200 people through o
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✨ Looking back on 2025, with thanks ✨ As we come to the end …
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Apr 18, 2024
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Craig Jackson | Fat Loss Coach on Instagram: "Four years ago, everything changed in a single moment. My wife Emma had a brain haemorrhage caused by a cavernoma, a cluster of weak blood vessels in her brain. It bled without warning and caused a stroke. And every day, Emma manages symptoms most people never see. Cavernoma Alliance UK were the first people who helped us. They helped our family adjust to a new life we never planned for. I want to give something back, and raise awareness for this con
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Craig Jackson | Fat Loss Coach on Instagram: "Four years ago, every…
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Cavernoma Society on Instagram: "🚨🚨Fundraising Announcement🚨🚨 🧐In December we said we would announce our fundraising goal for 2026! 🧐 ‼️Our goal is £10,000 which will help keep our services free to our members. We can not do this on our own and this is where we need your help‼️ ⭐️Whilst we support more than 1,700 members in the UK and some worldwide members, we are a relatively small charity and have no paid employees. 🙌All the funds raised are spent on services for our members, such as f
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Cavernoma Society on Instagram: "🚨🚨Fundraising Announcement🚨🚨 🧐In De…
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Johnny Van-Zant - JVZ on Instagram: "Hello everybody! I wanted to get the word out one more time. We are having our Rockin 4 a Cure event tomorrow and I just wanted to express my deepest gratitude to those who have donated or plan to bid on the auction items. My whole point in putting this event together is to bring awareness to cavernomas and to help fund a cure. Obviously my daughter, Taylor has a cavernoma and our family had no idea what this disease was until it became personal to us. There
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