Inside Rebecca Alexander’s Awareness Campaign for Usher Syndrome

Usher Syndrome - SlideServe

Today, on Rare Disease Day, we are honored to share a glimpse of the Mullarkey family’s story. In 2025, they were featured in our second national Every Second Counts commercial. During the making of that commercial, Rebecca Alexander sat down with Samantha and Alec Mullarkey to talk about their young son Michael’s unexpected diagnosis with Usher syndrome. Their story underscores why every second truly counts for families living with Usher syndrome and the importance of bringing awareness and tre

Usher syndrome: for patients - Gene Vision

On World Sight Day, we introduce Sophia, who lives with Usher syndrome, the leading genetic cause of deafblindness. Sophia is grateful for HHF's research toward better treatments and cures for Usher. | Hearing Health Foundation

Nyberg: How Usher Syndrome impacts Connecticut families

Spotlight on Usher syndrome 👁️‍🗨️ Today, we're highlighting how those with Usher syndrome may experience the progression of their vision loss. Did you know there are three general categories of Usher syndrome? They are even further subdivided into types based on the mutated gene causing the disease! You can learn more about Usher syndrome on our website at: www.FightingBlindness.org/diseases/usher-syndrome Video Description: Text reading “Here’s How Usher Syndrome Progression May Look For Some