The Truth About Usher Syndrome: A Heart-To-Heart With Sharon Rowe
The Truth About Usher Syndrome: A Heart-To-Heart With Sharon Rowe
4 months ago
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Today is Usher Syndrome Awareness Day 🖤 I live with Usher Syndrome type 2 which means I am deaf blind. My world gets quieter and darker over time but my voice is here to make sure no one forgets us. The Usher Syndrome Coalition has one goal: to find treatments and a cure while making sure every person and family living with this condition feels seen and supported. Usher Syndrome is the leading cause of combined deafness and blindness yet so many people have never heard of it. That is why I spea
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