Hurler Syndrome (MPS I) Explained Causes, Symptoms and Treatment, All Insights
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Kennedy and her brother Lincoln have a rare disease called MPS1, hurler syndrome. MPS1 causes the body to not produce certain enzymes that are needed in the breakdown of the body’s garbage. Essentially, the garbage builds up with no garbage truck to take it out. This has an effect on every part of the body, shortening life expectancy. There is no cure for MPS1. Our mission is to raise awareness and find a cure. | The Kennedy Ladd Foundation, Inc.
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Kennedy and her brother Lincoln have a rare disease called MPS1, …
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Kennedy has a rare genetic disorder called MPS1, Hurler Syndrome. This rare disease has an effect on every aspect of the body and there is no cure. She has had to undergo many surgeries to fight these effects including double hip, double knee, and double ankle surgery last November. She is still learning how to walk after such a large procedure. Children like Kennedy need the hope of a cure. We are on a mission to raise awareness and fund a cure. If you are an MPS family, welcome to our commUNIT
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